Claire’s Place Foundation/Facebook Claire Wineland, an internet celebrity who chronicled living with cystic fibrosis, died on Sunday. Hundreds of thousands of people watched her videos and read her posts where she discussed her illness and sought to change public perception of it. She died after a lung transplant partly crowdfunded by her followers. Claire […]
Tag: cystic
A new Korean skin care company borne from a battle with cystic acne believes you only need 3 products to achieve clear skin
The Insider Picks team writes about stuff we think you’ll like. Business Insider has affiliate partnerships, so we get a share of the revenue from your purchase. Panacea We’re often led to believe that the more products you slap on your face, the more effective they’ll be. Skin care brand Panacea supports the opposite: with […]
Cystic fibrosis treatment: How can you put a price on my little girl’s life?
GETTY Cystic fibrosis affects 10,400 people in the UK, and five babies are born with the disease each week My beautiful little girl doesn’t look sick. In fact she looks so well that anyone who doesn’t know her wouldn’t have a clue that she has cystic fibrosis (CF), the UK’s most common life-threatening inherited disease. […]
Cystic fibrosis treatment: How can you put a price on my little girl’s life?
WHEN the alarm goes at 5.30am every day I have to fight the instinct to hide under the duvet like a child and avoid starting the mammoth treatment regime that lies ahead for our five-year-old daughter Charlotte. Daily Express :: Health Feed
‘Keep them well’: New cystic fibrosis medications move closer to a cure
Results of a new drug trial suggest the next generation of medications, known as CFTR modulators, show potential to correct the genetic defect that causes cystic fibrosis and halt the disease’s destructive progression. CBC | Health News
Why Canadians with cystic fibrosis live 10 years longer than patients in U.S.
Over the last two decades there’s been a big improvement in survival rates for people with cystic fibrosis, with patients in Canada living 10 years longer than those in the U.S. CBC | Health News
This woman has an incurable cystic lung disease. Why is she laughing?
A woman who gave up a legal career to raise money to find a cure for her rare lung disease also runs a successful business that encourages humour, reaffirming the belief that laughter is excellent medicine. CBC | Health News